Please read here the information about personal data processing.
Donations
Help us fight for the children affected by this illness.
Your donation is an investment in the future, an investment to guarantee a future for them, because their lives are in the balance.
Your donation is also a message of solidarity & commitment, a message of support for the affected families, to help them feel supported & accompanied on their road to a better quality of life, a treatment & a cure.
Many thanks!
You can collaborate with us in different ways
- Deposit or bank transfer to our bank account:
Bank entity: Caja Rural de Navarra
IBAN code: ES78 3008 0195 9145 2341 5125
Holder: ASOCIACIÓN HODEILARGI DE APOYO A FAMILIAS AFECTADAS POR ENFERMEDADES RARAS - Donations via Bizum:
Code: 03939
Alias: ASOCIACIÓN HODEILARGI
The contributions will go to:
- Promote and subsidize medical research on Batten disease, especially that targeting the CLN6 variant.
- Facilitate the care and treatment of affected children, such as Hodei and Ilargi, and support their families.
- Organize activities aimed at raising awareness of Batten disease.
