Donations

Help us fight for the children affected by this illness.

Your donation is an investment in the future, an investment to guarantee a future for them, because their lives are in the balance.

Your donation is also a message of solidarity & commitment, a message of support for the affected families, to help them feel supported & accompanied on their road to a better quality of life, a treatment & a cure.

Many thanks!

You can collaborate with us in different ways

  • Deposit or bank transfer to our bank account:
    Bank entity: Caja Rural de Navarra
    IBAN code: ES78 3008 0195 9145 2341 5125
    Holder: ASOCIACIÓN HODEILARGI DE APOYO A FAMILIAS AFECTADAS POR ENFERMEDADES RARAS
  • Donations via Bizum:
    Code: 03939
    Alias: ASOCIACIÓN HODEILARGI

Please read here the information about personal data processing.

The contributions will go to:
  • Promote and subsidize medical research on Batten disease, especially that targeting the CLN6 variant.
  • Facilitate the care and treatment of affected children, such as Hodei and Ilargi, and support their families.
  • Organize activities aimed at raising awareness of Batten disease.